![]() ![]() Basically you are a burden, you are the burden to the family and they have extremely low expectation on what you can do. That is their expectation most of the time when they see a blind child or see a blind person. And that is number one thing because usually when people see a blind child, their first reaction is that oh what a pity, and then a second reaction is how is she going to do, what kind of life will be in the future, like she will be a useless person or a burden at home. Most of the time people just symphathize the parents who have a blind child. How do they treat the parents?Ī: Well one word can best describe the attitude, I think is sympathy. Q: What kind of environment are there in China if someone is blind, what kind of pressure is there, what kind of attitude people generally have in a town or a village to the fact that the parents have a blind child. But my parents always encourage me to go out, I climbed the tree with other kids, we have done lots of cool things together climbing the tree, stole water melon from farmers in a summer and picked tomatoes from a farmland, basically we were together doing a lot of things. So since I was little I realized or after a while I realized well I am different. So we went out and looked around and he said ”just go forward, go forward,” and I said what is it there, he said nothing, just go forward, so basically he tricked me into big water pond and I was like, hey, that was mean. ![]() Kids are just kids, they don’t know anything about it.Īnd I still remember when I was four or five years old, you know one of my neighbors a little kid was in my age, and he said, ”well, you want to go out with me?” ”yah, sure”. I think my parents were very smart in this way in how to even start to educate me, help me and train me as a normal kid since I was little, so they encourage me to go out with other kids, do all the other things with other ones, even though sometimes they tease me or bully me a little bit. In that way I could actually meet other children every day, I could have a social life with other kids and I can play with other kids instead of being isolated and stay at home all the time, which was very smart. So basically I grew up from my father’s school, as soon as I became blind, my parents decided that they were going to move to my father’s teachers’ apartment on campus. I can imagine it must be a very difficult choice for young parents like my parents, you know it is very difficult to choose because they knew if I do an operation and the chance to live is 50 percent, it is not even one hundred percent that the operation will be successful, at the same time they knew that I was going to be blind the rest of my life which is also very hard when you think about it.But I am extremely thankful that my parents made the decision that I was going to receive an operation and become blind, so since I was about three and four years old, I started to have memory about life surroundings and environment etc. ![]() The doctor basically told my parents that they have to make a decision, either they will sign operation letter with the hospital that I would do an operation, then I would become completely blind, that is one option and another option was that they would just let me go, you know, the tumor would grow and then I would eventually die. So my parents took me to many hospitals around China to see if they could save my vision, and it didn’t really help. It is called Ratobastoma and I always joke that you really need to buy lottery, you know, in order to win that kind of opportunity to have Ratobastoma in life. ![]() So people thought this was very strange, and they took me to hospital and then did a body checkup, and eventually they realized that I actually had a tumor in my eye, which is very unusual form of cancer. So basically I was born in a very simple regular family in China, and then after 15 months after I was born, then my parents realized that there was something wrong with me because I cried all the time every day and no matter what they do, I would never stop crying. I was born in a family in Huangqiao in Jiangsu province, eastern China, and my dad is a teacher and my mom is a clothing sellor. ![]()
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